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Unmet needs of gynaecological cancer survivors : implications for developing community support services

Beesley, Vanessa L., Eakin, Elizabeth G., Steginga, Suzanne, Aitken, Joanne F., Dunn, Jeff, & Battistutta, Diana (2008) Unmet needs of gynaecological cancer survivors : implications for developing community support services. Psycho-Oncology, 17(4), pp. 392-400.

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Abstract

After treatment completion, gynaecological cancer survivors may face long-term challenges and late effects, specific to this disease. Available research on supportive care needs of women with gynaecological cancer is limited. This study aimed to determine the prevalence and correlates of unmet needs within a population of gynaecological cancer survivors. Eight-hundred and two women participated in a population-based mail survey in 2004 (56% response rate). The questionnaire included a validated instrument to assess 45 need items across multiple supportive care domains, and a range of measures to evaluate related correlates consistent with a social-ecological perspective. Forty-three percent of respondents reported having at least one moderate or high level unmet need. The five highest included needing help with fear about the cancer spreading (17%), concerns about the worries of those close to them (15%), uncertainty about the future (14%), lack of energy/tiredness (14%), and not being able to do things they used to do (14%). Subgroups of women with higher odds of reporting 'some' unmet needs across multiple supportive care domains include those who, are not in remission, live with lymphoedema or are unable to work due to illness. Odds were also higher for women who had undergone more recent treatment, and who lived in rural or remote locations. Further assistance with the top specific concerns of gynaecological cancer survivors is recommended. Identified subgroups with higher needs are important targets for support.

Impact and interest:

55 citations in Scopus
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48 citations in Web of Science®

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ID Code: 13929
Item Type: Journal Article
Keywords: supportive care, cancer, perceived needs, continuity of patient care, oncology
DOI: 10.1002/pon.1249
ISSN: 1057-9249
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700) > Public Health and Health Services not elsewhere classified (111799)
Divisions: Current > Research Centres > Centre for Health Research
Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Copyright Owner: Copyright 2008 John Wiley & Sons
Copyright Statement: The definite version is available on publication at www3.interscience.wiley.com
Deposited On: 01 Jul 2008
Last Modified: 29 Feb 2012 23:39

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