What people with newly diagnosed MS (and their families and friends) need to know

Wollin, Judy, Dale, Helen, Spencer, Nancy, & Walsh, Anne M. (2000) What people with newly diagnosed MS (and their families and friends) need to know. International Journal of MS Care, 2(3).


The aim of the study was to identify from people with MS and their families, what information, in what format and when in the course of the disease they felt would assist the newly diagnosed person with MS and their family. A state wide cross sectional self-report study design was utilised for this research project. Thirty-four people with MS and 18 family members participated in the research proper. Participants self selected. The people with MS and family and friends who participated in this research wish to be provided with a range of information. They recommended that the newly diagnosed and their families be provided with information that reflects their personal needs, be provided in person in both group and individual sessions and include research aimed at cures and therapies, counselling and support services early in the course of the disease.

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ID Code: 1600
Item Type: Journal Article
Refereed: Yes
Additional URLs:
ISSN: 1537-2073
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Nursing not elsewhere classified (111099)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Copyright Owner: Copyright 2000 Clinicians Group
Copyright Statement: The contents of this journal can be freely accessed online via the journal’s web page (see link).
Deposited On: 09 Dec 2005 00:00
Last Modified: 09 Jun 2010 12:25

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