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Gynaecological cancer survivors and community support services : referral, awareness, utilisation and satisfaction

Beesley, Vanessa L., Janda, Monika, Eakin, Elizabeth G., Auster, Josephine F., Chambers, Suzanne K., Aitken, Joanne F., Dunn, Jeff, & Battistutta, Diana (2010) Gynaecological cancer survivors and community support services : referral, awareness, utilisation and satisfaction. Psycho-Oncology, 9(1), pp. 54-61.

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Abstract

Objectives

To quantify gynaecological cancer survivors’ referral to, awareness of, utilisation of and satisfaction with community support services, as well as the factors associated with service use.

Methods

In 2004, 802 gynaecological cancer survivors, three months to five years post-diagnosis, completed a postal questionnaire (56% response rate). Descriptive statistics summarised outcome prevalences. Logistic regression models identified correlates of service utilisation.

Results

Substantial proportions of women were aware of the main cancer support organisation, Cancer Council Queensland (72%), and of information booklets (74%), helplines (66%), support groups (56%) and internet information (50%). Less than half were aware of other services. The most commonly used resources and services were information booklets (37%), the internet (23%), and helplines (20%). More broadly, 43% utilised information/internet support, 30% utilised psychosocial services and 27% utilised functional/practical services. Approximately one-fifth (19%) used more than one support types. Having a health care provider referral, being diagnosed with lymphoedema or living in northern Queensland were associated with higher odds of service use in all three of the support types. While most (86%) of those referred used a service, only a few women received referrals. Among users, satisfaction with services was high.

Conclusions

While gynaecological cancer survivors accessed a variety of support, there is a need to ensure women are aware of services. Given the low prevalence of referrals and that referral was a key influence on service use, clinician education may be necessary to improve service referral. Organisations should also consider strategies to keep services high on clinicians’ radars.

Impact and interest:

7 citations in Scopus
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6 citations in Web of Science®

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157 since deposited on 18 May 2009
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ID Code: 17368
Item Type: Journal Article
Additional URLs:
Keywords: Cancer, Support service awareness and utilization, Supportive care referral, Continuity of patient care, Correlates of service use, Gynecological oncology
DOI: 10.1002/pon.1528
ISSN: 1057-9249
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700) > Public Health and Health Services not elsewhere classified (111799)
Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Public Health & Social Work
Copyright Owner: Copyright 2009 John Wiley & Sons Ltd.
Copyright Statement: The definitive version is available at www3.interscience.wiley.com
Deposited On: 18 May 2009 14:16
Last Modified: 30 Oct 2013 13:44

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