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Ethical challenges of life story research with ex-prisoners with intellectual disability

Ellem, Kathleen , Wilson, Jill, Chui, Wing Hong , & Knox, Marie F. (2008) Ethical challenges of life story research with ex-prisoners with intellectual disability. Disability & Society, 23(5), pp. 497-509.

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Abstract

This paper outlines the ethical considerations when engaging in life story research with ex-prisoners with intellectual disability. Based on a study conducted in Queensland, Australia, the authors explore some of the challenges that have arisen through the lens of principle-based ethics. The significant disadvantage experienced by ex-prisoners with intellectual disability warrants further attention by social researchers, and care must be taken not to further harm this group through the research process. Issues pertaining to the broad ethical concepts of integrity, justice, respect for persons and beneficence are examined to identify the degree to which they can guide the actions of the life story researcher. Examples are given as to how the researcher responded to difficulties as they arose and the authors discuss ways forward from a principle-based approach.

Impact and interest:

8 citations in Scopus
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7 citations in Web of Science®

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ID Code: 18178
Item Type: Journal Article
Additional URLs:
Keywords: Intellectual disability, Learning disability, Life story research, Prison, Ethical
DOI: 10.1080/09687590802177064
ISSN: 0968-7599
Subjects: Australian and New Zealand Standard Research Classification > STUDIES IN HUMAN SOCIETY (160000) > CRIMINOLOGY (160200) > Criminology not elsewhere classified (160299)
Australian and New Zealand Standard Research Classification > PHILOSOPHY AND RELIGIOUS STUDIES (220000) > APPLIED ETHICS (220100) > Professional Ethics (incl. police and research ethics) (220107)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Past > Schools > Social Work & Human Services
Copyright Owner: Taylor & Francis Group
Copyright Statement: 6. the right to post your revised text version of the ‘postprint’ of the Article (i.e., the Article in the form accepted for publication in a Taylor & Francis journal following the process of peer review), after an embargo period commencing 12 months (STM) or 18 months (SSH) after first publication (either in print or online), as an electronic file on an Author’s own website for personal or professional use, or on an Author’s internal university, college, or corporate network or intranet, or within an Institutional or Subject Repository, but not for commercial sale or for any systematic external distribution by a third party (for example a listserv or database connected to a public access server) subject to the following Page 3 of 5 acknowledgement: ‘This is an electronic version of an article published in [include the complete citation information for the final version of the article as published in the print edition of the journal]. [JOURNAL TITLE] is available online at: http://www.informaworld.com with the open URL of your article (see point 4 for open URL details). For the avoidance of doubt, ‘your version’ is the author version and not the publisher-created PDF, HTML or XML version posted as the definitive, final version of scientific record.
Deposited On: 21 Apr 2009 10:00
Last Modified: 29 Feb 2012 23:48

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