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“I want to see the Queen” : experiences of service use by ageing people with an intellectual disability

Bigby, Christine & Knox, Marie (2009) “I want to see the Queen” : experiences of service use by ageing people with an intellectual disability. Australian Social Work, 62(2), pp. 216-231.

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Abstract

People with intellectual disability are a relatively new but growing minority group within Australia's ageing population. Disability policies point to the equal right of people with disabilities to a quality of life similar to that of other citizens. Disability services are increasingly required to provide individualised and responsive services, irrespective of age, for people with lifelong disabilities. The present study explored the everyday lives of older people with intellectual disability in Victoria and Queensland, examining their experiences of using disability services and the ways in which services responded to their ageing. The aim of the study was to inform practice and service development for older people with intellectual disability. The findings suggest that services facilitate important social relationships with other service users and staff. Most older people had a sense of belonging and led busy but directionless lives in two disconnected worlds. Their lives were subject to significant external present-focused control. Yet, despite this, neither services nor family members took responsibility for ensuring their sense of continuity or supporting the development of plans about their future. The experiences described suggest an urgent need for, but significant challenges in the implementation of, holistic indivdualised planning similar to the UK concept of person-centred planning.

Impact and interest:

4 citations in Scopus
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4 citations in Web of Science®

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ID Code: 29409
Item Type: Journal Article
Additional URLs:
Keywords: Intellectual Disability, Disability Policy, Person-Centred Planning
DOI: 10.1080/03124070902748910
ISSN: 0312-407X
Subjects: Australian and New Zealand Standard Research Classification > STUDIES IN HUMAN SOCIETY (160000) > POLICY AND ADMINISTRATION (160500) > Social Policy (160512)
Australian and New Zealand Standard Research Classification > STUDIES IN HUMAN SOCIETY (160000) > SOCIOLOGY (160800) > Social Change (160805)
Australian and New Zealand Standard Research Classification > STUDIES IN HUMAN SOCIETY (160000) > SOCIAL WORK (160700) > Social Work not elsewhere classified (160799)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Exercise & Nutrition Sciences
Deposited On: 22 Dec 2009 14:26
Last Modified: 29 Feb 2012 23:59

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