Impact of disability on families : Grandparents’ perspectives
Background Caring for a child with a disability can be a unique and challenging experience, with families often relying on informal networks for support. Often, grandparents are key support resources, yet little is known about their roles and experiences. Reporting on data collected in a larger Australian study, this article explores grandparents' experiences of caring for a child with a disability and the impact on their family relationships and quality of life.
Method A qualitative purposive sampling design was utilised; semi-structured interviews were conducted with 22 grandparents (17 women, 5 men) of children with a disability. Grandparents ranged in age from 55 to 75 years old and lived within a 90-min drive of Brisbane, Australia. Interviews were transcribed and responses analysed using a thematic approach, identifying categories, themes and patterns.
Findings Four key themes characterised grandparents' views about their role in the family: holding own emotions (decision to be positive), self-sacrifice (decision to put family needs first), maintaining family relationships (being the ‘go-between’) and quality of life for family in the future (concerns about the future).
Conclusions Grandparents are central to family functioning and quality of life, but this contribution comes with a significant cost to their own personal well-being. Implications for policy, practice and research are discussed, particularly grandparents' fear that their family could not cope without their support.
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|Item Type:||Journal Article|
|Keywords:||communication, family relationships, grandparents, intellectual disability, ageing|
|Subjects:||Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100)|
|Divisions:||Current > Schools > School of Design|
Current > QUT Faculties and Divisions > Creative Industries Faculty
Past > Schools > School of Design
|Copyright Owner:||Copyright 2011 The Authors. Journal of Intellectual Disability Research © 2011 Blackwell Publishing Ltd|
|Copyright Statement:||The definitive version is available at www3.interscience.wiley.com|
|Deposited On:||02 Nov 2011 08:43|
|Last Modified:||20 Jan 2013 13:32|
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