QUT ePrints

Impact of disability on families : Grandparents’ perspectives

Miller , Evonne, Buys, Laurie, & Woodbridge , Sandra (2012) Impact of disability on families : Grandparents’ perspectives. Journal of Intellectual Disability Research, 56(1), pp. 102-110.

View at publisher

Abstract

Background Caring for a child with a disability can be a unique and challenging experience, with families often relying on informal networks for support. Often, grandparents are key support resources, yet little is known about their roles and experiences. Reporting on data collected in a larger Australian study, this article explores grandparents' experiences of caring for a child with a disability and the impact on their family relationships and quality of life.

Method A qualitative purposive sampling design was utilised; semi-structured interviews were conducted with 22 grandparents (17 women, 5 men) of children with a disability. Grandparents ranged in age from 55 to 75 years old and lived within a 90-min drive of Brisbane, Australia. Interviews were transcribed and responses analysed using a thematic approach, identifying categories, themes and patterns.

Findings Four key themes characterised grandparents' views about their role in the family: holding own emotions (decision to be positive), self-sacrifice (decision to put family needs first), maintaining family relationships (being the ‘go-between’) and quality of life for family in the future (concerns about the future).

Conclusions Grandparents are central to family functioning and quality of life, but this contribution comes with a significant cost to their own personal well-being. Implications for policy, practice and research are discussed, particularly grandparents' fear that their family could not cope without their support.

Impact and interest:

0 citations in Scopus
Search Google Scholar™
0 citations in Web of Science®

Citation countsare sourced monthly from Scopus and Web of Science® citation databases.

These databases contain citations from different subsets of available publications and different time periods and thus the citation count from each is usually different. Some works are not in either database and no count is displayed. Scopus includes citations from articles published in 1996 onwards, and Web of Science® generally from 1980 onwards.

Citations counts from the Google Scholar™ indexing service can be viewed at the linked Google Scholar™ search.

Full-text downloads:

102 since deposited on 01 Nov 2011
57 in the past twelve months

Full-text downloadsdisplays the total number of times this work’s files (e.g., a PDF) have been downloaded from QUT ePrints as well as the number of downloads in the previous 365 days. The count includes downloads for all files if a work has more than one.

ID Code: 46749
Item Type: Journal Article
Keywords: communication, family relationships, grandparents, intellectual disability, ageing
DOI: 10.1111/j.1365-2788.2011.01403.x
ISSN: 0964-2633
Subjects: Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100)
Divisions: Current > Schools > School of Design
Current > QUT Faculties and Divisions > Creative Industries Faculty
Past > Schools > School of Design
Copyright Owner: Copyright 2011 The Authors. Journal of Intellectual Disability Research © 2011 Blackwell Publishing Ltd
Copyright Statement: The definitive version is available at www3.interscience.wiley.com
Deposited On: 02 Nov 2011 08:43
Last Modified: 20 Jan 2013 13:32

Export: EndNote | Dublin Core | BibTeX

Repository Staff Only: item control page