Contributors to life satisfaction in parents of an adult child with Down syndrome

Cuskelly, Monica, Gilmore, Linda, & White, Sarah (2012) Contributors to life satisfaction in parents of an adult child with Down syndrome. Journal Of Intellectual Disability Research, 56(7-8), p. 733.

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Aim: This study investigated: (1) concurrent relationships between measures of family life and parental satisfaction with life in parents of an adult with Down syndrome and (2) influence of early family functioning on current parental satisfaction.

Method: Sixty-two families were interviewed using a semi-structured interview, and responded to a series of questionnaires related to family functioning when their child with Down syndrome was between 7 and 15 years. Fifteen years later parents were asked to provide data on their current situation, including mental health, and satisfaction and difficulties with respect to care-giving in relation to their adult child.

Results: Over half the families provided data to the second phase of the study. Life circumstances were appreciably worse for a small group of families than had been the case 15 years previously; however, these changes were generally unrelated to their parenting role. Overall, parents reported experiencing satisfaction from their care-giving role and did not report high levels of difficulties emanating from this role.

Conclusions: Most parents demonstrated good levels of personal functioning, although there was a small group for whom this was not the case. Earlier functioning did not make a strong contribution to current levels of life satisfaction.

Impact and interest:

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ID Code: 52807
Item Type: Journal Article
Refereed: Yes
Keywords: Down syndrome, parents, life satisfaction, predictors
DOI: 10.1111/j.1365-2788.2012.01583_8.x
ISSN: 0964-2633
Subjects: Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100) > Developmental Psychology and Ageing (170102)
Divisions: Current > QUT Faculties and Divisions > Faculty of Education
Deposited On: 27 Jul 2012 00:28
Last Modified: 16 Jul 2017 12:01

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