Health professionals’ perspectives on information provision for patients with brain tumours and their families

Langbecker, Danette H., Janda, Monika, & Yates, Patsy (2013) Health professionals’ perspectives on information provision for patients with brain tumours and their families. European Journal Of Cancer Care, 22(2), pp. 179-187.

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A significant number of patients diagnosed with primary brain tumours report unmet information needs. Using concept mapping methodology, this study aimed to identify strategies for improving information provision, and to describe factors that health professionals understood to influence their provision of information to patients with brain tumours and their families. Concept mapping is a mixed methods approach that uses statistical methods to represent participants’ perceived relationships between elements as conceptual maps. These maps, and results of associated data collection and analyses, are used to extract concepts involved in information provision to these patients. Thirty health professionals working across a range of neuro-oncology roles and settings participated in the concept mapping process.

Participants rated a care coordinator as the most important strategy for improving brain tumour care, with psychological support as a whole rated as the most important element of care. Five major themes were identified as facilitating information provision: health professionals’ communication skills, style and attitudes; patients’ needs and preferences; perceptions of patients’ need for protection and initiative; rapport and continuity between patients and health professionals; and the nature of the health care system. Overall, health professionals conceptualised information provision as ‘individualised’, dependent on these interconnected personal and environmental factors.

Impact and interest:

7 citations in Scopus
7 citations in Web of Science®
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ID Code: 53312
Item Type: Journal Article
Refereed: Yes
Keywords: brain tumour, health professionals, information provision, communication, supportive care, concept mapping
DOI: 10.1111/ecc.12011
ISSN: 1365-2354
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Nursing
Current > Schools > School of Public Health & Social Work
Copyright Owner: Copyright 2012 Blackwell Publishing Ltd
Copyright Statement: The definitive version is available at
Deposited On: 26 Aug 2012 22:56
Last Modified: 07 May 2016 17:39

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