Exploring the information practices of people with end stage kidney disease

Bonner, Ann & Lloyd, Annemaree (2012) Exploring the information practices of people with end stage kidney disease. Journal of Renal Care, 38(3), pp. 124-130.

View at publisher


This small exploratory study sought to understand how people with End Stage Kidney Disease (ESKD) experience the information environment and what information practices they employ in order to inform the decisions they make in relation to treatment and care. Using a constructivist methodology, in-depth interviews were conducted with five people who were receiving haemodialysis in two small satellite dialysis units located in regional and rural communities in New South Wales, Australia. Thematic analysis revealed two types of patients. The first type appears to adopt a received view of information, who do not question their condition; and passively accept information. In the other type, patients were found to be engaged; they actively identified their information needs and quickly learned what that they needed to ask and who to ask. Knowing the information practices of people with ESKD is useful for nephrology nurses when providing patient education.

Impact and interest:

5 citations in Scopus
Search Google Scholar™

Citation counts are sourced monthly from Scopus and Web of Science® citation databases.

These databases contain citations from different subsets of available publications and different time periods and thus the citation count from each is usually different. Some works are not in either database and no count is displayed. Scopus includes citations from articles published in 1996 onwards, and Web of Science® generally from 1980 onwards.

Citations counts from the Google Scholar™ indexing service can be viewed at the linked Google Scholar™ search.

Full-text downloads:

182 since deposited on 05 Dec 2012
44 in the past twelve months

Full-text downloads displays the total number of times this work’s files (e.g., a PDF) have been downloaded from QUT ePrints as well as the number of downloads in the previous 365 days. The count includes downloads for all files if a work has more than one.

ID Code: 55312
Item Type: Journal Article
Refereed: Yes
Keywords: patient knowledge, Renal, information literacy, health literacy, education
DOI: 10.1111/j.1755-6686.2012.00258.x
ISSN: 1755-6686
Subjects: Australian and New Zealand Standard Research Classification > INFORMATION AND COMPUTING SCIENCES (080000) > LIBRARY AND INFORMATION STUDIES (080700) > Library and Information Studies not elsewhere classified (080799)
Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Nursing
Copyright Owner: Copyright 2012 European Dialysis and Transplant Nurses Association/European Renal Care Association
Copyright Statement: The definitive version is available at www.blackwell-synergy.com
Deposited On: 05 Dec 2012 05:09
Last Modified: 02 Oct 2013 05:19

Export: EndNote | Dublin Core | BibTeX

Repository Staff Only: item control page