Carer impressions of participation in Alzheimer’s disease clinical trials: What are their hopes? And is it worth it?

Mastwyk, Maree, Ritchie, Craig W., LoGiudice, Dina, Sullivan, Karen A., & Macfarlane, Stephen (2002) Carer impressions of participation in Alzheimer’s disease clinical trials: What are their hopes? And is it worth it? International Psychogeriatrics, 14(1), pp. 39-45.

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Background: We aimed to assess why carers seek participation for their relatives in clinical trials of Alzheimer’s disease (AD) medications, and to assess carer impressions of the value of trial participation. Method: A retrospective questionnaire was sent to 31 carers of participants in clinical trials for AD conducted at the Mental Health Research Institute and the National Aging Research Institute between January 1997 and December 1999. Results: Twenty five questionnaires (81%) were returned, completed to an extent to permit analysis. Helping a relative feel better, contributing to medical science and hoping for a cure were the main reasons for trial participation. In general, carers found the regular consultation with research staff supportive and would recommend trial participation to others. Conclusion: A greater understanding of the motivations of carers may aid the recruitment and retention of participants in clinical trials.

Impact and interest:

11 citations in Scopus
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7 citations in Web of Science®

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ID Code: 5543
Item Type: Journal Article
Refereed: Yes
Keywords: Alzheimers disease, clinical trials, carers, expectations, follow, up, support, motivation
DOI: 10.1017/S1041610202008268
ISSN: 1041-6102
Subjects: Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100) > Health Clinical and Counselling Psychology (170106)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Copyright Owner: Copyright 2002 Cambridge University Press
Copyright Statement: Reproduced in accordance with the copyright policy of the publisher.
Deposited On: 27 Nov 2006 00:00
Last Modified: 09 Jun 2010 12:35

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