Qualitative study of adversity activated development and resilience in adolescents and young adults with congenital heart disease and their parents

Kaiser, Jillian, Strodl, Esben, & Schweitzer, Robert (2012) Qualitative study of adversity activated development and resilience in adolescents and young adults with congenital heart disease and their parents. In Gow, Kathryn M. & Celinski, M J (Eds.) Trauma : Recovering from Deep Wounds and Exploring the Potential for Renewal. NOVA Science Publishers, New York, pp. 221-237.

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Abstract

What is it like to have a medical condition that few people have ever heard about? How does it feel to have to question whether daily physical activities are dangerous for you, whilst you watch your friends enjoy those activities without a care? Can you imagine that you need to have a complicated heart surgery, with risks such as paralysis or death? Or even imagine facing the painful recovery period and scars after such a surgery? Then imagine that you are a child or teenager dealing with this medical condition when all your friends are simply occupied with school and normal life. Now consider that surgery has been undertaken to extend your lifespan, but the operation is so new that the long-term outcomes are just not known? All you really know is that you might have ‘surgical repairs’ to your heart and symptoms may be relieved or managed by medications or cardiac devices, but you are never going to be cured. What if you had already experienced painful, frightening, lonely and tedious hospitalisations and you were forced to put your life on hold to re-enter that situation, time and time again. This may be your life, as a Congenital Heart Disease or CHD patient. How do such patients cope and in many cases even thrive? This chapter will review current international literature regarding the medical and personal impact of CHD. Our qualitative study of the perspectives of young CHD patients and their parents contributes to the Australian story of CHD, as well as highlighting the potential for CHD related adversity to promote personal development.

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ID Code: 55933
Item Type: Book Chapter
Keywords: Congenital Heart Disease, Phenomenology, Parents, Children, Adversity Activated Development
ISBN: 9781620812259
Subjects: Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100) > Health Clinical and Counselling Psychology (170106)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Psychology & Counselling
Copyright Owner: Copyright 2012 NOVA Science Publishers
Deposited On: 20 Dec 2012 05:09
Last Modified: 09 Jun 2016 04:49

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