The experiences of primary caregivers of an in-home ventilator-dependent child : a phenomenographic study

Wang, Katherine, Barnard, Alan G., & McCosker, Heather (2004) The experiences of primary caregivers of an in-home ventilator-dependent child : a phenomenographic study. [Working Paper] (Unpublished)

Abstract

Background

The development of paediatric home healthcare is underpinned by three principles: first to increase the quality of life of patients and families, second to decrease cost and the length of hospital stay, and third to promote community participation in healthcare delivery. With the advancement of technology and the transformation of healthcare delivery, an increasing number of children who are chronically ventilator-dependent are been discharged to home.

Aim

The aim was to investigate and describe the qualitative experiences of primary caregivers who care for ventilator-dependent children at home.

Methods

Phenomenography was chosen as the qualitative research approach for the study. Seventeen primary caregivers who cared for a ventilator-dependent child at home were recruited from four states of Australia.

Findings

Seven categories of description and an outcome space are the research outcomes. The care-giving experience was understood as:

(1) “hospital is another world to me‿;

(2) “it’s a new world‿;

(3) an ambiguous social identity;

(4) the medical technology with my child is frightening but necessary;

(5) “the difficulty is having the carers at home‿;

(6) social isolation, and;

(7) the experience as changing as a person.

Conclusion

The outcomes of the study reveal the significant and distinctive nature of the care-giving experiences of the primary caregivers. The outcomes emerged from the study are germane to clinical practice development, health education, policy formulation, and research development in paediatric home healthcare.

Impact and interest:

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ID Code: 597
Item Type: Working Paper
Keywords: paediatric home ventilation, technology, caregiver, chronic illness, phenomenography, qualitative research paediatric home ventilation, technology, caregiver, chronic illness, phenomenography, qualitative research
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Clinical Nursing - Tertiary (Rehabilitative) (111004)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Copyright Owner: Copyright 2004 The Authors
Deposited On: 16 Dec 2005
Last Modified: 12 Feb 2015 03:08

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