The experiences of primary caregivers of an in-home ventilator-dependent child: a phenomenographic study
Background. The development of paediatric home healthcare is underpinned by three principles: first to increase the quality of life of patients and families, second to decrease cost and the length of hospital stay, and third to promote community participation in healthcare delivery. With the advancement of technology and the transformation of healthcare delivery, an increasing number of children who are chronically ventilator-dependent are been discharged to home.
Aim. The aim was to investigate and describe the qualitative experiences of primary caregivers who care for ventilator-dependent children at home.
Methods. Phenomenography was chosen as the qualitative research approach for the study. Seventeen primary caregivers who cared for a ventilator-dependent child at home were recruited from four states of Australia.
Findings. Seven categories of description and an outcome space are the research outcomes. The care-giving experience was understood as (1) “hospital is another world to me‿; (2) “it’s a new world‿; (3) an ambiguous social identity; (4) the medical technology with my child is frightening but necessary; (5) “the difficulty is having the carers at home‿; (6) social isolation; and (7) the experience as changing as a person.
Conclusion. The outcomes of the study reveal the significant and distinctive nature of the care-giving experiences of the primary caregivers. The outcomes emerged from the study are germane to clinical practice development, health education, policy formulation, and research development in paediatric home healthcare.
Citation countsare sourced monthly fromand citation databases.
These databases contain citations from different subsets of available publications and different time periods and thus the citation count from each is usually different. Some works are not in either database and no count is displayed. Scopus includes citations from articles published in 1996 onwards, and Web of Science generally from 1980 onwards.
Citations counts from theindexing service can be viewed at the linked Google Scholar™ search.
Full-text downloadsdisplays the total number of times this work’s files (e.g., a PDF) have been downloaded from QUT ePrints as well as the number of downloads in the previous 365 days. The count includes downloads for all files if a work has more than one.
|Item Type:||Journal Article|
|Keywords:||paediatric home ventilation, technology, caregiver, chronic illness, phenomenography, qualitative research paediatric home ventilation, technology, caregiver, chronic illness, phenomenography, qualitative research|
|Subjects:||Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Clinical Nursing - Tertiary (Rehabilitative) (111004)|
|Divisions:||Current > QUT Faculties and Divisions > Faculty of Health|
Current > Institutes > Institute of Health and Biomedical Innovation
|Deposited On:||16 Dec 2005|
|Last Modified:||02 Feb 2012 19:39|
Repository Staff Only: item control page