The health information practices of people living with chronic health conditions: Implications for health literacy

Lloyd, Annemaree, Bonner, Ann, & Dawson-Rose, Carol (2013) The health information practices of people living with chronic health conditions: Implications for health literacy. Journal of Librarianship and Information Science.

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The reduction of the health literacy concept to a functional relationship with text, does not acknowledge the range of information sources that people draw from in order to make informed decision about their health and treatment. Drawing from two studies that explored how people with two different but complex and life-threatening chronic health conditions, chronic kidney disease and HIV, a socio-cultural understanding of the practise of health literacy is described. Health information is experienced by patients as a chronic health condition landscape, and develops from three information sources; namely epistemic, social and corporeal sources. Participants in both studies used activities that involved orienting, sharing and creating information to map this landscape which was used to inform their decision-making. These findings challenge the traditional conceptions of health literacy and suggest an approach that views the landscape of chronic illness as being socially, physically and contextually constructed. This approach necessitates a recasting of health literacy away from a sole interest in skills and towards understanding how information practices facilitate people becoming health literate.

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9 citations in Scopus
9 citations in Web of Science®
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ID Code: 63351
Item Type: Journal Article
Refereed: Yes
Additional Information: Published online before print May 17, 2013
Keywords: Health literacy, Health information, Health information practices, Health information sources, Chronic illness, Decision making, Chronic kidney disease, HIV
DOI: 10.1177/0961000613486825
ISSN: 0961-0006
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Deposited On: 16 Oct 2013 23:33
Last Modified: 19 Jul 2017 13:01

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