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Genetic testing and human genetic databases

Gesche, Astrid H. (2006) Genetic testing and human genetic databases. In Betta, Michela (Ed.) The moral, social, and commercial imperatives of genetic testing and screening : the Australian case. Springer, The Netherlands, Dordrecht, pp. 71-93.

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Abstract

Genetic databases would not exist without the input from donors. Their samples and their associated information are the foundation of their existence. Genetic databases contain very personal, sensitive information and, if misused, could lead to any number of potential harms for the donor. Consequently, the operation and use of genetic databases should meet the highest ethical standards backed up by effective regulations and legislation. The aim of this chapter is to first describe genetic databases and their function before turning to two of the most controversial ethical issues that surround genetic databases, namely privacy and informed consent and describe how the Australian Government has so far responded to these challenges. It will close by turning to an explicit example, that is, the National Criminal Investigation DNA Database (NCIDD), which is one of a web of databases overseen by the CrimTrac agency of Australia.

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ID Code: 6360
Item Type: Book Chapter
Additional URLs:
Keywords: Genetic testing, human genetic databases, genetic information, privacy, informed consent, ethics, National Criminal Investigation DNA Database
DOI: 10.1007/978-1-4020-4619-3_4
ISBN: 1402046189
Subjects: Australian and New Zealand Standard Research Classification > INFORMATION AND COMPUTING SCIENCES (080000)
Australian and New Zealand Standard Research Classification > LAW AND LEGAL STUDIES (180000)
Australian and New Zealand Standard Research Classification > PHILOSOPHY AND RELIGIOUS STUDIES (220000) > APPLIED ETHICS (220100) > Applied Ethics not elsewhere classified (220199)
Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000)
Australian and New Zealand Standard Research Classification > BIOLOGICAL SCIENCES (060000) > GENETICS (060400)
Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700)
Australian and New Zealand Standard Research Classification > STUDIES IN HUMAN SOCIETY (160000) > OTHER STUDIES IN HUMAN SOCIETY (169900)
Divisions: Current > Research Centres > Centre for Social Change Research
Past > QUT Faculties & Divisions > QUT Carseldine - Humanities & Human Services
Copyright Owner: Copyright 2006 Springer
Deposited On: 13 Mar 2007
Last Modified: 22 Jun 2011 22:48

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