Biobanking of blood and bone marrow : emerging challenges for custodians of public resources

Aparicio, Lorena, Lipworth, Wendy, Then, Shih-Ning, Stewart, Cameron, Coghlan, Patrick, Kerridge, Ian, & Fleming, Jennifer (2013) Biobanking of blood and bone marrow : emerging challenges for custodians of public resources. Journal of Law and Medicine, 21, pp. 343-350.

Abstract

The Australian Bone Marrow Donor Registry (ABMDR) is a publicly funded company that is part of an international network that facilitates unrelated bone marrow transplantation. This role means that the ABMDR has access to a large biospecimen repository, therefore making it a highly valuable research resource. Recognising the potential value of these biospecimens for research purposes, the ABMDR is in the process of determining whether, and how, to share its biospecimens with other biobanks. While this would undoubtedly be of value to the scientific community, and ultimately to the wider community, it would also inevitably transform the role of an institution whose primary role is therapeutic, and would compromise the degree of control that a custodian has over donated material. This article describe the challenges confronting the ABMDR, and organisations like it, in balancing their duties to donors, patients, researchers and the general public. These problems have led inevitably to the use of "property" rights language in the discussion of these issues but notions of gift, ownership, trusteeship and transfer might also be considered.

Impact and interest:

1 citations in Scopus
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ID Code: 66310
Item Type: Journal Article
Refereed: Yes
Additional URLs:
Keywords: Biobanks, Custodians, Australian Bone Marrow Donor Registry
ISSN: 1320-159X
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700) > Public Health and Health Services not elsewhere classified (111799)
Australian and New Zealand Standard Research Classification > LAW AND LEGAL STUDIES (180000) > OTHER LAW AND LEGAL STUDIES (189900)
Divisions: Current > QUT Faculties and Divisions > Faculty of Law
Current > Research Centres > Australian Centre for Health Law Research
Current > Schools > School of Law
Copyright Owner: Copyright 2013 Thomson Reuters (Australia/NZ)
Deposited On: 20 Jan 2014 01:28
Last Modified: 22 Jan 2014 03:13

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