An exploratory study of grief and health-related quality of life for caregivers of people with dementia

Shuter, Patricia, Beattie, Elizabeth, & Edwards, Helen (2014) An exploratory study of grief and health-related quality of life for caregivers of people with dementia. American Journal of Alzheimer's Disease and Other Dementias, 29(4), pp. 379-385.

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Abstract

The aim of this qualitative study was to explore key positive and negative factors that impact on grief resolution and health outcomes of caregivers who were caring, or had cared, for a family member with dementia who had died. The study was a scoping study and involved face-to-face interviews with these family caregivers (N ¼ 13). Results indicated a complex interaction of issues (many unique to dementia caregiving) which in different combinations acted as protective or risk factors for caregiver outcomes. Interaction of individual characteristics, role appraisal, value of intrinsic and extrinsic resources, and experiences with health professionals during the caregiving period and around the death of their relative were shown to have the most influence on caregiver outcomes. Psychological resilience and satisfaction with caregiving were protective against negative outcomes while unresolved grief was a risk factor. These findings highlight the potential benefits of multicomponent, holistic dementia caregiver interventions.

Impact and interest:

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3 citations in Web of Science®

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ID Code: 66566
Item Type: Journal Article
Refereed: Yes
Additional Information: Published online before print December 31, 2013
Keywords: dementia, grief, health outcomes, protective and risk factors, family caregivers
DOI: 10.1177/1533317513517034
ISSN: 1938-2731
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Aged Care Nursing (111001)
Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700) > Aged Health Care (111702)
Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PUBLIC HEALTH AND HEALTH SERVICES (111700) > Mental Health (111714)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Nursing
Deposited On: 31 Jan 2014 02:50
Last Modified: 05 Jul 2015 21:54

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