Whose business is dying? Death, the home and palliative care

Rosenberg, John P. (2011) Whose business is dying? Death, the home and palliative care. Cultural Studies Review, 17(1), pp. 15-30.

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Abstract

The process of dying at home brings the nexus between the paternalism of conventional palliative care and a social understanding of end of life care into sharp focus. Away from institutional places of care, issues of ownership, compliance and communal responsibility are heightened. At this interface, palliative care services are confronted with the irony of relinquishing their 'ownership' of dying whilst leading communities to reclaim their principal role in the business of dying. This benign – but enduring – paternalism remains a barrier to a paradigmatic shift towards a more complete understanding of the business of dying. Whilst nascent attempts to promote community engagement in end of life issues are evident in the interface between palliative care and public health, dying remains, for the most part, the remit of health care services. In this article, I contend that the business of dying is incompletely attended. This lack of attention will be partially redressed here by considering the home as a fitting death scene.

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ID Code: 69007
Item Type: Journal Article
Refereed: Yes
Keywords: palliative care, public health, social models, home care
ISSN: 1837-8692
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Nursing not elsewhere classified (111099)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Schools > School of Nursing
Copyright Owner: Copyright 2011 John Rosenberg
Deposited On: 20 Mar 2014 22:48
Last Modified: 15 May 2014 06:06

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