Multiple perspectives on quality of life for residents with dementia in long term care facilities: Protocol for a comprehensive Australian study

Beattie, Elizabeth, O'Reilly, Maria, Moyle, Wendy, Chenoweth, Lesley, Fetherstonhaugh, Deirdre, Horner, Barbara, Robinson, Andrew, & Fielding, Elaine (2015) Multiple perspectives on quality of life for residents with dementia in long term care facilities: Protocol for a comprehensive Australian study. International Psychogeriatrics, 27(10), pp. 1739-1747.

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Abstract

Background

  • Dementia is a chronic illness without cure or effective treatment, which results in declining mental and physical function and assistance from others to manage activities of daily living. Many people with dementia live in long term care facilities, yet research into their quality of life (QoL) was rare until the last decade. Previous studies failed to incorporate important variables related to the facility and care provision or to look closely at the daily lives of residents. This paper presents a protocol for a comprehensive, multi-perspective assessment of QoL of residents with dementia living in long term care in Australia. A secondary aim is investigating the effectiveness of self-report instruments for measuring QoL.

Methods

  • The study utilizes a descriptive, mixed methods design to examine how facility, care staff, and resident factors impact QoL. Over 500 residents with dementia from a stratified, random sample of 53 facilities are being recruited. A sub-sample of 12 residents is also taking part in qualitative interviews and observations.

Conclusions

  • This national study will provide a broad understanding of factors underlying QoL for residents with dementia in long term care. The present study uses a similar methodology to the US-based Collaborative Studies of Long Term Care (CS-LTC) Dementia Care Study, applying it to the Australian setting.

Impact and interest:

2 citations in Scopus
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3 citations in Web of Science®

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ID Code: 84060
Item Type: Journal Article
Refereed: Yes
Keywords: dementia, quality of life (QoL), long term care, residential facilities
DOI: 10.1017/S1041610215000435
ISSN: 1041-6102
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Nursing not elsewhere classified (111099)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Nursing
Copyright Owner: Copyright 2015 International Psychogeriatric Association
Deposited On: 13 May 2015 03:19
Last Modified: 19 May 2016 01:05

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