Pressure placed on paediatric haematopoietic stem cell donors: Views from health professionals

Then, Shih-Ning (2015) Pressure placed on paediatric haematopoietic stem cell donors: Views from health professionals. Journal of Paediatrics and Child Health, 51(12), pp. 1182-1187.

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Abstract

Aim

Paediatric haematopoietic stem cell donors undergo non-therapeutic procedures and endure known and unknown physical and psychosocial risks for the benefit of a family member. One ethical concern is the risk they may be pressured by parents or health professionals to act as a donor. This paper adds to what is known about this topic by presenting the views of health professionals.

Methods

This qualitative study involved semi-structured interviews with 14 health professionals in Australasia experienced in dealing with paediatric donors. Transcripts were analysed using established qualitative methodologies.

Results

Health professionals considered that some paediatric donors experience pressure to donate. Situations were identified that were likely to increase the risk of pressure being placed on donors and views were expressed about the ethical ‘appropriateness’ of these practices within the family setting.

Conclusions

Children may be subject to pressure from family and health professionals to be tested and act as donors, Therefore, our ethical obligation to these children extends to implementing donor focused processes – including independent health professionals and the appointment of a donor advocate – to assist in detecting and addressing instances of inappropriate pressure being placed on a child.

Impact and interest:

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ID Code: 84737
Item Type: Journal Article
Refereed: Yes
Additional URLs:
Keywords: bone marrow transplantation, siblings, paediatrics, ethics, qualitative research
DOI: 10.1111/jpc.12934
ISSN: 1440-1754
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > PAEDIATRICS AND REPRODUCTIVE MEDICINE (111400) > Paediatrics (111403)
Australian and New Zealand Standard Research Classification > PHILOSOPHY AND RELIGIOUS STUDIES (220000) > APPLIED ETHICS (220100) > Medical Ethics (220106)
Divisions: Current > QUT Faculties and Divisions > Faculty of Law
Current > Research Centres > Australian Centre for Health Law Research
Current > Schools > School of Law
Copyright Owner: Copyright 2015 The author and Paediatrics and Child Health Division (Royal Australasian College of Physicians)
Deposited On: 12 Jun 2015 02:54
Last Modified: 03 Jun 2016 04:16

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