Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults

Tyack, Zephanie, Ziviani, Jenny, Kimble, Roy, Plaza, Anita, Jones, Amber, Cuttle, Leila, & Simons, Megan (2015) Measuring the impact of burn scarring on health-related quality of life: Development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults. Burns, 41(7), pp. 1405-1419.

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Abstract

INTRODUCTION

No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults.

METHOD

Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP).

RESULTS

Participants comprised Australian adults (n=23) and children (n=19) with burn scarring; caregivers of children with burn scarring (n=28); and international scar management experts (n=14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors.

CONCLUSION

The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway.

Impact and interest:

1 citations in Scopus
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4 citations in Web of Science®

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ID Code: 93550
Item Type: Journal Article
Refereed: Yes
Keywords: Burns, Cicatrix, Health and wellbeing, Hypertrophic, Outcome assessment, Patient reported outcomes, Quality of life
DOI: 10.1016/j.burns.2015.05.021
ISSN: 0305-4179
Divisions: Current > Schools > School of Biomedical Sciences
Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Deposited On: 08 Mar 2016 02:06
Last Modified: 08 Mar 2016 21:34

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