Parenting a child with haemophilia while living in a non-metropolitan area

Little, Trudi, Strodl, Esben, Brown, Simon, & Mooney, Tara (2016) Parenting a child with haemophilia while living in a non-metropolitan area. Journal of Haemophilia Practice, 3(1), pp. 24-32.

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Abstract

The experience of living in a non-metropolitan area and parenting a child with haemophilia is relatively unknown. Using Interpretive Phenomenological Analysis (IPA), the following study explored the experiences of seven parents, from which four themes emerged: ‘bearing the brunt of diagnosis’ captures the impact of the diagnosis; ‘if you can’t help me, who can?’ reveals experiences with the health system; ‘tackling the challenge of treatment’ encompasses difficulties in adhering to the treatment regime; ‘I need you to understand’ reflects desires for others support and understanding. These themes should be considered when developing support systems and interventions for parents living in non-metropolitan areas.

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ID Code: 94772
Item Type: Journal Article
Refereed: Yes
Keywords: Haemophilia, parenting, non-metropolitan, coping, stressors
DOI: 10.17225/jhp00066
ISSN: 2055-3390
Subjects: Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100) > Health Clinical and Counselling Psychology (170106)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Schools > School of Psychology & Counselling
Copyright Owner: Copyright 2016 Author
Copyright Statement: This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Deposited On: 12 Apr 2016 22:36
Last Modified: 13 Apr 2016 22:07

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