Parenting a child with haemophilia while living in a non-metropolitan area

Little, Trudi, Strodl, Esben, Brown, Simon, & Mooney, Tara (2016) Parenting a child with haemophilia while living in a non-metropolitan area. Journal of Haemophilia Practice, 3(1), pp. 24-32.

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The experience of living in a non-metropolitan area and parenting a child with haemophilia is relatively unknown. Using Interpretive Phenomenological Analysis (IPA), the following study explored the experiences of seven parents, from which four themes emerged: ‘bearing the brunt of diagnosis’ captures the impact of the diagnosis; ‘if you can’t help me, who can?’ reveals experiences with the health system; ‘tackling the challenge of treatment’ encompasses difficulties in adhering to the treatment regime; ‘I need you to understand’ reflects desires for others support and understanding. These themes should be considered when developing support systems and interventions for parents living in non-metropolitan areas.

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ID Code: 94772
Item Type: Journal Article
Refereed: Yes
Keywords: Haemophilia, parenting, non-metropolitan, coping, stressors
DOI: 10.17225/jhp00066
ISSN: 2055-3390
Subjects: Australian and New Zealand Standard Research Classification > PSYCHOLOGY AND COGNITIVE SCIENCES (170000) > PSYCHOLOGY (170100) > Health Clinical and Counselling Psychology (170106)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Schools > School of Psychology & Counselling
Copyright Owner: Copyright 2016 Author
Copyright Statement: This is an Open Access article distributed under the terms of the Creative Commons Attribution License (, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Deposited On: 12 Apr 2016 22:36
Last Modified: 13 Apr 2016 22:07

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