A feasibility study to track the last 12 months of life in chronic kidney disease patients: Baseline characteristics

Chambers, Shirley, Bonner, Ann, Chhabra, Shivani, Healy, Helen, Ratanjee, Sharad, Kark, Adrian, Yates, Patsy, & Hoy, Wendy (2016) A feasibility study to track the last 12 months of life in chronic kidney disease patients: Baseline characteristics. In Renal Society of Australasia 44th Annual Conference, 20-22 June 2016, Gold Coast, Qld.

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Chronic kidney disease (CKD) is associated with a high symptom burden and reduced quality of life particularly in individuals who are in their final year of life. A palliative care approach that targets symptom burden would benefit many patients but few collaborative renal/palliative care services exist.


To track the experiences and health service utilisation of people with CKD over the last 12 months of life.


A longitudinal, prospective design was used to follow 19 patients attending a renal service without a formal collaborative renal/palliative care approach. Inclusion criteria were age ≥18 years, CKD stages 3-5, prognosis <12 months (using “surprise question”) and cognitively sound. Measures included modified dialysis symptom index (31 symptoms; prevalence, frequency, severity and distress), Australian Karnofsky Performance Scale scores (AKPS), and if known to a palliative care service (PCS).


Baseline characteristics were: median age 78 years (range 42 - 90); male (n=12); CKD stages 4 (n=4) and 5 (n=15); 9 non-dialysis and 10 haemodialysis; and median AKPS score was 60 (range 40-70). The most prevalent symptoms were lack of energy (n=15, 98.95%), dry mouth (n=13, 68.42%) and dry skin (n=13, 68.42%). Lack of energy and sleep problems were the most severe and distressing symptoms. At baseline only two participants were actively engaged with a PCS.


Ascertaining changes over time in symptom burden and functionality will assist with targeting the level and type of services needed along the end-of-life trajectory in CKD, and to ensure timely and appropriate renal and palliative care is provided.

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ID Code: 96388
Item Type: Conference Item (Presentation)
Refereed: No
Additional URLs:
Keywords: Chronic Kidney Disease, Palliative Care
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000)
Divisions: Current > QUT Faculties and Divisions > Faculty of Education
Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Nursing
Copyright Owner: Copyright 2016 The Author(s)
Deposited On: 29 Jun 2016 00:30
Last Modified: 29 Jun 2016 00:30

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