Supporting people with chronic kidney disease to self-manage: What do the patients want?

Havas, Kathryn, Douglas, Clint, & Bonner, Ann (2016) Supporting people with chronic kidney disease to self-manage: What do the patients want? In Renal Society of Australasia 44th Annual Conference, 20-22 June 2016, Gold Coast, Qld.

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Chronic kidney disease (CKD) necessitates burdensome and intensive daily self- management, which requires support of healthcare providers (HCPs). The CKD literature is lacking regarding needs of patients.


To explore the types of self-management support (SMS) that people with CKD desire, and how they would like to receive this support.


In 2015, a cross-sectional survey was delivered face-to-face in a Queensland primary care clinic and Australia-wide via an online interface promoted by Kidney Health Australia. The survey was based upon research identifying 10 aspects of self-management that people with CKD report as needing more support. Participants had a self-reported diagnosis of any stage of CKD (N=97) and were ≥18 years old.


Respondents were 97 CKD patients aged 16-89 (M=56.44), who had been diagnosed with CKD zero-60 years ago (Mdn=8.08 years). The hardcopy survey was done by 36 participants, while 61 completed it online. Participants expressed strong interest in extra support across all 10 areas (Mdns=8.00 - 10.00). Furthermore, most (72.2%) would attend SMS sessions during work hours, though this would be more challenging for employed patients (47.1% able) than unemployed/retired (100.0% able). Most participants were open to receiving support from a nephrologist (70.1%) or external self-management expert (71.1%), while 52.6% were open to receiving it from a nurse.


While HCPs often focus on imparting CKD knowledge, patients desire practical daily strategies. Individuals’ circumstances should be taken into account when planning SMS, and many patients may not yet recognise the contribution that renal nurses can make.

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ID Code: 96390
Item Type: Conference Item (Presentation)
Refereed: No
Additional URLs:
Keywords: Chronic Kidney Disease, Self-management support
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Current > Schools > School of Nursing
Copyright Owner: Copyright 2016 The Author(s)
Deposited On: 29 Jun 2016 00:24
Last Modified: 29 Jun 2016 00:24

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