Understanding the experiences of mothers caring for children with down syndrome in Saudi Arabia

Sijeeni, Amal Salem M. (2016) Understanding the experiences of mothers caring for children with down syndrome in Saudi Arabia. Professional Doctorate thesis, Queensland University of Technology.


This study focuses on identifying the qualitatively different ways Saudi Arabian mothers understood caring for a child with Down syndrome in Saudi society. The findings of the research contribute to ongoing development of knowledge about caring for Down syndrome children in Saudi Arabia and highlight support needed for mothers. The methodological framework draws on phenomenography, which is geared toward capturing variation in the ways that people conceive phenomena in their social world. The research outcomes were five categories of description representing experiences of caring of Down syndrome child (being excluded, needing support, being isolated, being disappointed, having difficulty accessing services). The study highlights a need for development of more supportive social attitudes and policy for women and children with Down Syndrome.

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ID Code: 98052
Item Type: QUT Thesis (Professional Doctorate)
Supervisor: Barnard, Alan & Walsh, Anne
Keywords: Down Syndrome, Saudi Arabia, Disability, Mothers experinces, Exclusion of Women
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Institution: Queensland University of Technology
Deposited On: 29 Aug 2016 00:54
Last Modified: 29 Aug 2016 00:54

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