Genetic Testing and Human Genetic Databases
(2006) Genetic Testing and Human Genetic Databases, in Betta, Michela, Eds. The Moral, Social, and Commercial Imperatives of Genetic Testing and Screening: the Australian case, chapter 4, pages pp. 71-94. Springer.
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Abstract
Genetic databases would not exist without the input from donors. Their samples and their associated information are the foundation of their existence. Genetic databases contain very personal, sensitive information and, if misused, could lead to any number of potential harms for the donor. Consequently, the operation and use of genetic databases should meet the highest ethical standards backed up by effective regulations and legislation. The aim of this chapter is to first describe genetic databases and their function before turning to two of the most controversial ethical issues that surround genetic databases, namely privacy and informed consent and describe how the Australian Government has so far responded to these challenges. It will close by turning to an explicit example, that is, the National Criminal Investigation DNA Database (NCIDD), which is one of a web of databases overseen by the CrimTrac agency of Australia.
| Item Type: | Book Chapter |
|---|---|
| RM Number: | 2007006698 |
| Status: | Published |
| Place of Publication: | Dordrecht |
| Keywords: | Genetic testing; human genetic databases; genetic information; privacy; informed consent; ethics; National Criminal Investigation DNA Database |
| Subjects: | 320000 Medical and Health Sciences > 321200 Public Health and Health Services 270000 Biological Sciences > 270200 Genetics 390000 Law, Justice and Law Enforcement 320000 Medical and Health Sciences 360000 Policy and Political Science > 369900 Other Policy and Political Science 280000 Information, Computing and Communication Sciences |
| ID Code: | 6360 |
| Deposited By: | Gesche, Astrid |
| Deposited On: | 13 March 2007 |
| Alternative Locations: | http://www.springer.com/dal/home/generic/search/results?SGWID=1-40109-22-136777805-0 |
| Copyright Owner: | Copyright 2006 Springer |
| Additional Information: | For more information about this book please refer to the publisher's website (see link) or contact the author. Author contact details : a.gesche@qut.edu.au |