Family Caregivers' Experiences and Involvement With Cancer Pain Management

Yates, Patsy, Aranda, Sanchia, Edwards, Helen E., Nash, Robyn E., Skerman, Helen M., & McCarthy, Alexandra L. (2004) Family Caregivers' Experiences and Involvement With Cancer Pain Management. Journal of Palliative Care, 20(4), pp. 287-297.


The purpose of this descriptive cross-sectional study was to describe family caregiver involvement in and perceptions of cancer pain management. A consecutively recruited cohort of 75 patient-caregiver dyads attending an outpatient oncology clinic completed self-report questionnaires comprising standardized and investigator-developed measures of pain behaviours and experiences. Family caregivers reported high levels of confidence and willingness to participate in pain management, and extensive involvement in pain management activities including supporting, decision making, and communicating about pain. At the same time, many caregivers experienced a great deal of distress and some difficulties in performing these activities. The significance and scope of these caregiving experiences suggest that developing the caregiver's ability to effectively contribute to pain management is an important priority in efforts to improve cancer pain management.

Impact and interest:

32 citations in Scopus
25 citations in Web of Science®
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ID Code: 2060
Item Type: Journal Article
Refereed: Yes
Additional Information: Access to the author’s manuscript version is currently restricted pending permission from the publisher. For more information, please refer to the journal’s website (link above) or contact the author:
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ISSN: 0825-8597
Subjects: Australian and New Zealand Standard Research Classification > MEDICAL AND HEALTH SCIENCES (110000) > NURSING (111000) > Clinical Nursing - Secondary (Acute Care) (111003)
Divisions: Current > QUT Faculties and Divisions > Faculty of Health
Current > Institutes > Institute of Health and Biomedical Innovation
Copyright Owner: Copyright 2004 Centre for Bioethics, Clinical Research Institute of Montreal
Deposited On: 11 Oct 2005 00:00
Last Modified: 29 Feb 2012 13:07

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