I could have used a lot more help than I had: A qualitative systematic review and synthesis of families' experiences of paediatric brain tumour and schooling
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Description
Background: Brain tumours are the most common and fatal of all solid tumours for children and adolescents. The effects of the tumour and treatment (chemotherapy, radiation, and/or surgery) results in significant disruptions to childhood development and large amounts of missed schooling. Among other challenges for families, this produces obstacles for children and adolescents to achieve and maintain academic performance and experience positive schooling encounters.
Aims: We thus aimed to systematically identify and synthesize qualitative evidence on how families experience paediatric brain tumour from diagnosis and beyond with regards to their schooling and education to identify gaps in service delivery, research, and policy.
Methods: A protocol for this review was registered with PROSPERO (ID: CRD42020177165). Searches were conducted in Medline, CINAHL, PsycInfo, Embase, and Web of Science, and yielded 22 eligible papers (representing 17 studies). Data were extracted into NVivo12 and analysed by qualitative description.
Results: We formed the following domain summaries: academic (perceived failure to keep up with peers and finding success where one could, the importance of encouragement for diagnosed children), social (the importance of friendships and the harm of bullying), and support (the defining factor in overall return-to-school experience, often not enough received from educational professionals and clinicians). Our review highlights the need for more comprehensive, individualized, and integrated support for diagnosed children to return to educational institutions, and for the need to address their social experiences, particularly with regards to bullying, potentially through a school-wide social and emotional learning approach.
Conclusion: Funding support, evidence-based guidelines, staff skill development, and clear communication structures across families, health care facilities, schools, and educational departments are essential to achieving this.
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| ID Code: | 227898 | ||||||
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| Item Type: | Contribution to Journal (Journal Article) | ||||||
| Refereed: | Yes | ||||||
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| Additional Information: | Funding Information: The authors thank Joel Kuyava for his research assistance in cross‐checking the contents of Table 2 and Yvonne Hastings from The Brainchild Foundation for reviewing the manuscript. This work was supported by The Children’s Hospital Foundation as part of the state‐wide, multi‐institutional Centre for Child and Adolescent Brain Cancer (2019). Natalie Bradford is supported by an Investigator Grant from the National Health and Medical Research Council Australia (ID: APP1174733). | ||||||
| Measurements or Duration: | 24 pages | ||||||
| Keywords: | brain neoplasms, oncology, paediatrics, policy, return to school, schools | ||||||
| DOI: | 10.1111/bjep.12474 | ||||||
| ISSN: | 0007-0998 | ||||||
| Pure ID: | 105518869 | ||||||
| Divisions: | Current > Research Centres > Centre for Healthcare Transformation Current > Research Centres > Cancer and Palliative Care Outcomes Centre Current > QUT Faculties and Divisions > Faculty of Health Current > Schools > School of Nursing |
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| Funding Information: | The authors thank Joel Kuyava for his research assistance in cross‐checking the contents of Table 2 and Yvonne Hastings from The Brainchild Foundation for reviewing the manuscript. This work was supported by The Children’s Hospital Foundation as part of the state‐wide, multi‐institutional Centre for Child and Adolescent Brain Cancer (2019). Natalie Bradford is supported by an Investigator Grant from the National Health and Medical Research Council Australia (ID: APP1174733). | ||||||
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| Copyright Owner: | 2021 The British Psychological Society | ||||||
| Copyright Statement: | This work is covered by copyright. Unless the document is being made available under a Creative Commons Licence, you must assume that re-use is limited to personal use and that permission from the copyright owner must be obtained for all other uses. If the document is available under a Creative Commons License (or other specified license) then refer to the Licence for details of permitted re-use. It is a condition of access that users recognise and abide by the legal requirements associated with these rights. If you believe that this work infringes copyright please provide details by email to qut.copyright@qut.edu.au | ||||||
| Deposited On: | 09 Feb 2022 02:17 | ||||||
| Last Modified: | 02 Aug 2024 22:45 |
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