Challenges and solutions to cancer-related financial toxicity according to Australian health professionals: qualitative results from a national survey

McLoone, Jordana, , Varlow, Megan, Whittaker, Kate, Lindsay, Daniel, , Leigh, Lillian, Muir, Laura, Mackay, Gillian, Karikios, Deme J., Hunt, Lee, Hobbs, Kim, Goldsbury, David E., Nabukalu, Doreen, & (2023) Challenges and solutions to cancer-related financial toxicity according to Australian health professionals: qualitative results from a national survey. Supportive Care in Cancer, 31(7), Article number: 441.

Open access copy at publisher website

Description

Purpose: To qualitatively explore Australian healthcare professionals’ perspectives on how to improve the care and management of cancer-related financial toxicity, including relevant practices, services, and unmet needs. Methods: We invited healthcare professionals (HCP) who currently provide care to people with cancer within their role to complete an online survey, which was distributed via the networks of Australian clinical oncology professional associations/organisations. The survey was developed by the Clinical Oncology Society of Australia’s Financial Toxicity Working Group and contained 12 open-ended items which we analysed using descriptive content analysis and NVivo software. Results: HCPs (n = 277) believed that identifying and addressing financial concerns within routine cancer care was important and most believed this to be the responsibility of all HCP involved in the patient’s care. However, financial toxicity was viewed as a “blind spot” within a medical model of healthcare, with a lack of services, resources, and training identified as barriers to care. Social workers reported assessment and advocacy were part of their role, but many reported lacking formal training and understanding of financial complexities/laws. HCPs reported positive attitudes towards transparent discussions of costs and actioning cost-reduction strategies within their control, but feelings of helplessness when they perceived no solution was available. Conclusion: Identifying financial needs and providing transparent information about cancer-related costs was viewed as a cross-disciplinary responsibility, however, a lack of training and services limited the provision of support. Increased cancer-specific financial counselling and advocacy, via dedicated roles or developing HCPs’ skills, is urgently needed within the healthcare system.

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ID Code: 245029
Item Type: Contribution to Journal (Journal Article)
Refereed: Yes
ORCID iD:
Chan, Raymond J.orcid.org/0000-0003-0248-7046
Gordon, Louisa G.orcid.org/0000-0002-3159-4249
Additional Information: Funding Information: Open Access funding enabled and organized by CAUL and its Member Institutions This study was supported by the University of New South Wales, Medicine and Health and QIMR Berghofer Medical Research Institute. RJC receives salary support from the National Health and Medical Research Council (APP1194051).
Measurements or Duration: 7 pages
Keywords: Financial counselling, Financial toxicity, Telehealth
DOI: 10.1007/s00520-023-07875-4
ISSN: 0941-4355
Pure ID: 151830987
Divisions: Current > Research Centres > Cancer and Palliative Care Outcomes Centre
Current > QUT Faculties and Divisions > Faculty of Health
Current > Schools > School of Nursing
Funding Information: Open Access funding enabled and organized by CAUL and its Member Institutions This study was supported by the University of New South Wales, Medicine and Health and QIMR Berghofer Medical Research Institute. RJC receives salary support from the National Health and Medical Research Council (APP1194051).
Funding:
Copyright Owner: 2023 The Authors
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Deposited On: 06 Dec 2023 06:51
Last Modified: 29 Feb 2024 14:07