Unleashing patient voices: empowering adverse event assessment with complete patient-reported outcomes
Open access copy at publisher website
Description
The 124-item patient reported-outcome common terminology criteria for adverse events (PRO-CTCAE) questionnaire, assessing 78 symptoms, is widely used in cancer clinical trials to identify side effects. However, its regular use in routine cancer care is rarely reported. We aimed to investigate the feasibility of weekly PRO-CTCAE completion over 9 weeks in a prospective study with 30 patients with cancer undergoing chemotherapy. Participants were asked to complete electronic surveys with reminders, but no feedback or incentives. Only 136 (50%) of the planned 270 time points at which a PRO-CTCAE self-report was expected were completed, with an additional 21 (8%) partially completed, and represents a failure to achieve the expected level of completion. Patients reported experiencing up to 51 and a median of 30 symptoms across all time points, highlighting the complexity of symptom assessment in acute cancer care. While weekly implementation of the PRO-CTCAE may not be feasible outside of clinical trial settings, this study highlights the breadth of symptoms experienced.
Impact and interest:
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ID Code: | 248884 | ||||||
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Item Type: | Contribution to Journal (Journal Article) | ||||||
Refereed: | Yes | ||||||
ORCID iD: |
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Measurements or Duration: | 4 pages | ||||||
DOI: | 10.1093/oncolo/oyae105 | ||||||
ISSN: | 1083-7159 | ||||||
Pure ID: | 170206874 | ||||||
Divisions: | Current > Research Centres > Centre for Healthcare Transformation Current > Research Centres > Cancer and Palliative Care Outcomes Centre Current > QUT Faculties and Divisions > Faculty of Health Current > Schools > School of Nursing |
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Funding Information: | This study was funded by an Institute of Health and Biomedical Innovation (IHBI) Early Career Researcher Grant awarded to the Principal Investigator. All publications or materials produced because of this study will acknowledge this funding source. | ||||||
Copyright Owner: | 2024 The Authors | ||||||
Copyright Statement: | This work is covered by copyright. Unless the document is being made available under a Creative Commons Licence, you must assume that re-use is limited to personal use and that permission from the copyright owner must be obtained for all other uses. If the document is available under a Creative Commons License (or other specified license) then refer to the Licence for details of permitted re-use. It is a condition of access that users recognise and abide by the legal requirements associated with these rights. If you believe that this work infringes copyright please provide details by email to qut.copyright@qut.edu.au | ||||||
Deposited On: | 04 Jun 2024 02:05 | ||||||
Last Modified: | 18 Jul 2024 21:06 |
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