Patients and Family Caregivers as 'Regulatory Actors' in Voluntary Assisted Dying Systems: A Qualitative Study in Australia and Canada
Jeanneret, Ruthie (2024) Patients and Family Caregivers as 'Regulatory Actors' in Voluntary Assisted Dying Systems: A Qualitative Study in Australia and Canada. PhD by Publication, Queensland University of Technology.
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Ruthie Jeanneret Thesis.PDF
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Description
This thesis by published papers takes a novel approach to examining regulation of Australian and Canadian voluntary assisted dying (‘VAD’) systems. It examines patients’ and family caregivers’ role in influencing VAD systems and argues that some patients and family caregivers should be conceived of as “regulatory actors”. Where they are behaving as regulatory actors because they want to or are supported by the system, this is positive. However, where patients and family caregivers are acting out of necessity to address identified system issues, it is incumbent on other actors (such as governments) to take action to address system issues.
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| ID Code: | 251669 |
|---|---|
| Item Type: | QUT Thesis (PhD by Publication) |
| Supervisor: | Close, Eliana, White, Benjamin, & Willmott, Lindy |
| Keywords: | Voluntary assisted dying, Medical assistance in dying, Euthanasia and assisted suicide, Patient experiences, Family caregivers, End-of-life law, End-of-life regulation, Regulatory space theory, Decentred regulation, Regulatory actors |
| DOI: | 10.5204/thesis.eprints.251669 |
| Divisions: | Current > Research Centres > Australian Centre for Health Law Research Current > QUT Faculties and Divisions > Faculty of Business & Law Current > Schools > School of Law |
| Institution: | Queensland University of Technology |
| Deposited On: | 03 Sep 2024 16:05 |
| Last Modified: | 16 Jan 2025 01:01 |
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