Here for you: Things you might like to discuss with the palliative care team about care at the end of life

This second booklet deals with topics you might like to discuss if your child’s illness progresses. There may also be relevant topics in the first booklet. The role of palliative care is to improve a child’s wellbeing in the context of serious illness. We understand that you may have questions or concerns about meeting the palliative care team. You may find this booklet helpful to think about topics you wish to discuss, or questions you have for the team. This booklet may include topics you are already wondering about, or may be helpful to consider in the future. We understand that families have unique knowledge about their child that informs care. We aim for our discussions to respect the important role families play in shared decision making. Different families are likely to have different questions, concerns, and needs. Some of the content of this booklet may not be relevant for your circumstances.